Recognize World Duchenne Awareness Day on September 7 by Supporting Everest to End Duchenne

By Tonya Dreher | August 23, 2017
World Duchenne Awareness Day

Duchenne muscular dystrophy (DMD) is a rare and fatal muscle-wasting illness that affects one in 3,500 boys in the world. Its victims are young – many don’t live past age 18, and those who do are often in wheelchairs due to the degenerative nature of the disease.

Treatment and perhaps even a cure are on the horizon. Breakthroughs in gene editing medical research offer hope. Our best bet is to help fund this research, get our boys into clinical trials, and be a part of eliminating DMD and educating parents and families about its importance.

On September 7, we’ll celebrate the advances that have occurred thus far, and the exciting breakthroughs to come, with World Duchenne Awareness Day. Launched first in Europe, this is the third year the world has come together to recognize and appreciate the work our community is doing.

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