Your corporate sponsorship will help save lives. Your company’s support matters.

We’ve never been closer to a treatment for DMD. Every dollar we receive for ETED goes directly to supporting gene therapy. Specifically, we donate all the funds we raise to the renowned University of Texas UT Southwestern Wellstone Muscular Dystrophy Cooperative Research Center through Parent Project Muscular Dystrophy (PPMD) where scientists recently made a breakthrough… Read More »

Finding Strength to Keep Going

A heartbreaking farewell to Joshua, a young boy with DMD A few weeks ago, the Duchenne community received a painful blow. A young boy named Joshua, not quite 12 years old, passed away from heart failure. When our children are diagnosed, the doctors say that their projected life span is early to mid 20’s. Some men with… Read More »

We’re Going Back to Everest!

June 2017 Update It’s so hard to believe that it’s been almost two years since the first Everest to End Duchenne (ETED) trek in Nepal! So much has changed in our lives since then – some good, some not so good. The 2015 ETED was our highest grossing fundraiser ever, which is why we are doing… Read More »

Pacific Crest Trail Update

Steve was outfitted with a tracking device for the Whitney expedition, courtesy of tech guru Mark Gallagher. Mark was finally able to track the team last night and see where they were camping – on the Pacific Crest Trail. Ben Stein was able to gather some weather reports today for the area (see photos). Not… Read More »

August 22 Journal Entry

So, Steve has been hiking in the wilds of California since early Friday morning. I have not heard from him….no one has heard from the team. I’m sure they are fine…but I am anxious anyway. They are carrying very heavy packs, and I heard this afternoon that it has been storming there and that there… Read More »