4 days until I leave for Everest.

4 days until I leave for Everest. It’s almost midnight…I can’t sleep. All of my gear is strewn all over the living room floor and I am just staring at it. Part of me is wondering, “What in the world am I doing? Why did I think I could do this?” How can I leave… Read More »

Traveling

Happy almost end-of-summer everyone! We had a very fun and busy few months, which included lots of swimming, hiking (for mom, anyway) and travel. We spent three weeks traveling to Minnesota, stopping to visit family and friends along the way. While it was mostly awesome, there was definitely a shift in how we can accommodate… Read More »

Perspective as Gus’ mom

We have been very busy with the Hope for Gus sponsored production of Oliver Twist! It was incredibly fun and the kids were amazing. Both Isabel and Gus were in the production. . . but Gus was adamant that he would NOT go on stage until the very last moment, when he went out there and was… Read More »

I just did some math

Dear friends, Thank you to all who have donated. I am about a third of the way to my goal! Last week I saw an orthopedist and was told that I have bursitis in my knee and a possible meniscus tear (an MRI will determine). So I have been wearing a ridiculously uncomfortable brace, feeling… Read More »

The Challenge

I will never, ever forget the day my son, Gus was diagnosed with Duchenne muscular dystrophy.  Our world crashed around us and every hope and dream we had for our boy faded away. Duchenne is devastating and will slowly take away all of Gus’ muscle function, and eventually end his life, if we do not… Read More »